Consultation, research, and compensation

What is it?

Most people experiencing disabilities, are Deaf, or have intersectional identities desire for their perspectives and expertise to be recognized and have an impact in their community and society at large. In traditional forms of research, financial product and services development, and policy making, these groups are often treated as subjects of study, or people to be consulted to justify decisions that have been made. This can lead to “tokenization” of people with lived experiences and can lead to products, services, policies, and research that have minimal positive impact for them.e

Articles

• “Compensation & Reimbursement of Research Participants”, Rachel Zand / University of Toronto.

• “Guidance on the Accessible Canada Regulations – Consulting persons with disabilities”, Employment and Social Development Canada.

Experiences

This Experiences section includes stories, perspectives, and experiences submitted by people experiencing disabilities or is Deaf. Where necessary, personal information have been changed to protect the privacy of the people involved.

• The form or amount of compensation does not match the expertise and knowledge offered by people with lived experience.

• Institutional policies restrict the types of payments offered to research participants restricting their freedom of choice or creating disincentive to engage in the activity.

• People with lived experiences are tired of being consulted with and not meaningfully engaged in the decisions or creation of the outcomes.

• Groups who have been involved in consultation desire to have their capacity built and empowered to do their own consultations.

External groups

The External Groups section contains links to organizations or individuals who are working, advocating, or innovating in this space. The parties mentioned in this list are not endorsed by the IDRC.

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Contribute to this topic

Do you have an article or resource to add to this page? Do you have an experience you would like to share? Add your insight and perspective to this topic by using one of the following options:

• Use the comment feature on this page by either: 1) highlighting text on the page and select “Comment”; or 2) using the “Comment” section at the bottom of the page.

• Completing the article submission web form or by completing the article submission Word document and emailing it to jhung@ocadu.ca.

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