Future Work
- Conduct Co-Design activities for the Personal Preference Approach
- Generate additional and/or modify existing Explorations and Scenarios based co-design
- Prototype/implement, one or more Explorations
Contact Virtual Healthcare Platform vendors about research and potential integrations
- Look into Journalling tools (existing and new) for aggregating data and synthesizing preferences
- Research AI/ML and data visualizations to help with analyzing data, but keeping the individual in control of their data, inferences, and privacy
- Examine the needs and impact on digital literacy, and design approaches to overcome potential challenges
- Review Preferences Server Future Considerations as needed
Questions to Answer
- What tools need to be built vs what is currently available and can be integrated with?
- Does the preference format need to be standardized? If so, how would that look?
- Is there a way to transform preferences between applications?
- If preferences are generated through a self-reflective process, where contextualized data is used to determine a preference, how is that contextualization and/or providence maintained?
- For example, if a preference is created due to an episodic event, it may be useful to understand why that was created, if revisiting at a later time, and or to provide information for how to apply that preference in specific systems.
- How will conflicts between preferences on a system be resolved?
- How to ensure that preferences aren't treated as medical conditions/data and used in ways that are detrimental to the individual (e.g. used by insurance companies to increase premiums) ?
- Where is the Preferences Server or other centralized store hosted?
- Can SMART and Fast Healthcare Interoperability Resources (FHIR) compliant medical records be leveraged as a store for preferences shared between medical systems?
- What privacy measures are needed to make sure that only the "preferences" portions are shared with systems that do not need to access other portions of the medical records?
- Similar to the Preferences Server, what format standardizations are required for the preferences, or is there a way that these can be transformed for use by each application?